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Hepatitis Foundation International
Patient Registry Network (HepPRN) Launched
WASHINGTON, DC (October 21, 2014) Community Engaged Network for All (CENA), a Patient Centered Outcomes Research Institute (PCORI) funded project, announced that the Hepatitis Patient Registry Network (HepPRN) launched today. This registry is a project of the Hepatitis Foundation International (HFI).
The Hepatitis Foundation International (HFI) is a 501 (c) 3 non-‐profit organization established in 1994 with world headquarters located in Silver Spring, MD. Since its inception, HFI has worked on eradicating chronic hepatitis by promoting and advocating for health and wellness. HFI has been on the forefront promoting preventative action to help modify unhealthy liver‐damaging behaviors before they start. HFI implements its mission through its touchstones to educate, prevent, serve, support and reach well over 5 million patients and health care professionals annually, through its public and private partnerships.
HFI’s Hepatitis Patient Registry Network (HepPRN) collects self‐reported data on the determinants of a patient’s health along the hepatitis health care continuum. his patient-‐ centric registry is focused on what it’s like to live and/or provide care for those with hepatitis. HepPRN also serves to engage more individuals in patient-‐centered research and trials.